Start of week 4, this morning morphine was discussed with the specialist. We're expecting the pain to get worse as the effects of the treatment accumulate.
Friday 15th March 2024 Into the city again to UCLH for my 3rd post treatment PET scan. Same as before, injected with the radioactive trace, an hour of rest whilst it circulates then a full body plus a specific head and neck scan. Takes about an hour and a half from start to finish. As I'm now back at work 5 days a week I went over to Aldgae and spent the rest of the day on the office. Now sat on a train at Liverpool St commuting home, like the old times..... I have a telephone appointment next Thursday so should get the result then.
17th June 2024 Back at UCLH three months after the last scan. Nothing major to report, still get tired more than usual, dry mouth overnight and still not 100% on the taste of Cadburys Fruit and Nut. My lymph node has been steadily shrinking over the course of the last three scans and nothing i have felt has made me believe that's not still ongoing. We'll find out later this week. Fingers crossed everything will run to time, I got bumped from Friday last week as one of the machines was down. It is busier in Nuclear Medicine reception than it has been before.
On 18th Jan I went back to UCLH for a follow up with the surgeons and subsequently the doctor who will be looking after my treatment. The surgeons were happy that they had got the primary source and presented two treatment options, surgery + chemo + radiotherapy or chemo + radiotherapy. There would be an added layer of risk to me to undergo the surgery and everyone is confident either path would result in a full recovery. With that information I decided the non-surgical option would be best. I am now awaiting a date to attend North Middlesex Hospital to start a chemo course, two sets, three weeks apart before I then get the chemo+radiotherapy daily for a further 6 weeks. Ultimately I am going to be off work for 6 months covering the treatment and recovery.
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